National advance care planning prevalence study

Are people getting the care they want?

Australia’s population is ageing, and the need for complex health care will rise accordingly. As our community ages and experiences multiple health issues, it becomes increasingly important to provide care in line with a person’s wishes.

Advanced illness or serious injury can sometimes mean that people are unable to make decisions about their care. This can happen to people of all ages, and especially towards end of life. It is important that organisations such as hospitals, aged care homes and general practices understand how a person wants to be cared for at this time.

The Evaluation of the National Palliative Care Strategy 2010 Final Report identified a lack of baseline advance care planning data and the need for national data to monitor the effectiveness of the strategy including uptake of advance care planning. 

High quality advance care planning data from hospitals general practices and residential aged care homes across Australia will be collected as part of this research. Such evidence will assist staff to better understand and support preferences for care.

  • Articles & Publications

    Evaluation of the National Palliative Care Strategy 2010, Report 2016

    Australian Government Department of Health

    This evaluation was undertaken to determine the relevance and useability of the National Palliative Care Strategy 2010. The evaluation was informed by an evidence review as well as national consultation through workshops, in-depth interviews, and online submissions.

  • Articles & Publications

    National Palliative Care Strategy 2010

    Australian Government Department of Health

    Supporting Australians to Live Well at the End of Life. This national strategy aims to achieve four goals relating the palliative care including (1) awareness and understanding, (2) appropriateness and effectiveness, (3) leadership and governance, and (4) capacity and capability.

Exploring people’s views on advance care planning

In a world first pilot study, Decision Assist, in partnership with Monash University, are aiming to determine the prevalence of advance care planning documentation persons over 65 in hospitals, general practices and aged care homes. The study will explore people’s views on advance care planning, and whether care plans developed for the person are consistent with documented patient-driven preferences for care, including medical treatment.

This project will appeal to organisations who want to contribute to groundbreaking research.

Organisations will benefit from:

  • assistance of researchers to determine how well they are recording a person’s preferences for care
  • opportunities to find out how they can improve person-centred care and implement long-term savings
  • the opportunity to use this well designed study as part of quality improvement and accreditation standards
  • funding to support participation in the study
  • recognition of your organisation’s contribution
  • a package of information, including a telephone advisory line, will be provided to ensure information is available to all staff members should questions on advance care planning arise during or after the project
  • training sessions in data collection
  • support and regular communication from the project team
  • a training manual to supplement the training program
  • continuing professional development points for staff undertaking training and data collection, where applicable (e.g., Category 1 RACGP points)